This is Tanner.
He's 8-years-old and - it's pretty much a law - 8-year-olds need good nicknames. I can't decide between T-Rex and Tan The Man. Or how about just Manner? That's pretty tough. It needs to be tough to counteract all this tutu nonsense. Wait. I'm getting ahead of myself.
Tanner is Her Bad Mother, Catherine's, nephew. He has Duchenne's Muscular Dystrophy, a disease that causes his muscles to deteriorate and it's not going to stop until he dies. I don't have the writing chops to deal with that last sentence in a way that's effective so I'm just going to keep going because that's what we do. I've been reading about Tanner via Catherine and the Shredheads and their quest to raise awareness of muscular dystrophy by running races in tutus.
I know. Tutus. Dude. So then, today, I read that this tutu madness was going to storm the BlogHer 5K in NYC on August 6th and that Tanner was going to be there.
This little Tanner guy. T-Rex. T-Bone. Tan The MAN! He's going to be there. And he started evolving from this sad abstraction on the internet into the kid who's going to be there. Which made me think "Dammit, Tanner. I am NOT wearing a tutu. That's totally stupid." I mean if I were Tanner (with all due respect to the Shredheads), I'm sorry. I'd be more than a little inclined to wonder what's up with the flipping tutus. So, I wondered, what could I do for Tanner that's way cooler and tougher and also not a tutu?
That's when the BlogHer 5K transformed, with no permission from its organizers (Devil take permission), into the Black Hockey Jesus BlogHer 5K(s) for Tanner. What? Yeah. When I hit the finish line, I'm going around again. And again. And again. Everybody else will be gone. Off to breakfast. But I'm going to keep cracking off 5Ks in Central Park. For Tanner. Until my muscles quit letting me. Until I catch a fraction of a glimpse into the world he lives in.
And here's where you come in. I want you to sponsor me by making a donation to help Tanner and other kids like him. See that widget on my sidebar over there, above the Paul Klee painting? Scroll back up. You can use that to donate or visit my new website sponsored by The Black Hockey Jesus Run For Tanner Institute Of Philanthropy.
And there's 2 ways to play:
1). Just make a donation because you're a charitable spirit with a big heart or
2). Make a pledge in my comments for a dollar amount per 5K. For instance, if you pledge $10 and I run 6 5Ks in a row, then you donate $60. I'll run till I quit on August 6th, let you know what happens, and you stay true to your pledge by August 10th.
Sound good? Let's do it then. I'm looking forward to running the initial 5K with all the participants and welcome anyone else who wants to keep going and keep me company. And, okay fine, I'll wear a tutu - a black one. A Black Hockey Tutu.